My sister and I are a few years older than Samantha and Libby, but we grew up together. My parents have been friends with Steve and Debi, Samantha and Libby’s parents, since the early 80’s, and when my parents learned that Sam and Libby had Cystic Fibrosis (CF), they determined to do what they could to help.
- Libby was diagnosed with CF when she was 3 days old, the doctors knew to look for it because her older sister, Samantha, had it. Libby is now 27, met Will in college and they have been married for 3 years. They live in the Highlands area of Denver and she works as a Speech Language Pathologist. This picture was taken on their recent trip to Banff, Canada.
In 1989, they, along with a handful of other friends of Steve and Debi’s, started the CF Project, a campaign to raise awareness about CF. In my mom’s words, “CF is invisible. You can’t tell if a person has it.” Soon after that, they learned that the Cystic Fibrosis Foundation was creating a fundraising walk for Cystic Fibrosis called Great Strides.
At that time, people with CF lived to their teen years.
Today, many live into their 30’s and 40’s.
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
- clogs the lungs and leads to life-threatening lung infections; and
- obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond. (above information from cff.org)
Since it started, Great Strides in Colorado Springs has increased from raising around $40,000 or $50,000 to now raising well over $100,000.00. Huge advances have been made in treating CF, but scientists have still not found a cure.
Now, Samantha is 30 and Libby is 27. Samantha is pregnant…with twins…and due in about a month!!!!
People with CF look and act just like anyone else. BUT, they have a daily treatment regimen that lasts two to three hours, to break up the mucus in their lungs and to treat and prevent infections. Every time they eat, they must take enzyme pills to help the food digest, 20 or more pills per day.
CYSTIC FIBROSIS HAS TO BE CURED.
I want to grow old with Samantha and Libby.
SO HERE IT IS…On May 19, 2012, The Goat Cheese Lady Team will walk in Great Strides. And, as a team we WILL RAISE $10,000! SO FAR, we’ve raised $2590.00!!
You’ve seen my Dream List, right? It’s on line 15.
And, we need help!! We need team members!!! We need donations!
WE NEED YOU!!!!!
Here’s how you can help:
1. Sign up for The Goat Cheese Lady team here. Start raising money now! And, meet us at the Great Strides walk in Colorado Springs on May 19, 2012! Set yourself a personal fundraising goal…mine is $1000. What’s yours?
2. If you can make a donation, click here then click “Make A Donation” and donate to The Goat Cheese Lady team. Whatever amount you can donate will help us reach the $10,000 goal!!!
YOU Will be an AWESOME part of The Goat Cheese Lady Team! We can’t wait to have you!!!
We only have a month to go! Please join us to raise money to CURE Cystic Fibrosis!!!
– The Goat Cheese Lady Team Leader